Our Mission

Core Principles

The following core principles set the foundation of the Alliance and its activities:

  1. Person-centred care. Transplant care should address the whole person, not just the medical condition.

  2. Equal partnership. People with transplants should participate as equal partners in healthcare decisions and in shaping the guidelines, research, and policies that affect their lives.

  3. Complementary expertise. The lived experience and self-knowledge of people with transplants is a valuable complement to the clinical expertise of healthcare professionals.

  4. Peer engagement. People with transplants should play an active role in educating fellow patients, organ donors and their families, caregivers, and transplant professionals.

  5. Transparency and access. Patient information, research, and data should be transparent, accessible, and readily available to the transplant community.

Objectives

The ESOT-ETPO Alliance is committed to the following:

  • Foster trust and dialogue by creating an open, inclusive environment that enables meaningful conversations between people with transplants and transplant professionals.

  • Reduce unwarranted variation by addressing unjustified disparities in transplant care across Europe to improve consistency and outcomes for all patients.

  • Improve health and quality of life by delivering tangible benefits to the overall well-being of the transplant population.

  • Enable shared decision-making by ensuring that people with transplants are genuine partners in decisions about their care — supported by clear, accessible information and a full understanding of available treatment options. Informed consent should be treated as an ongoing, dynamic process that begins as early as possible in the transplant journey.

  • Advance person-centred digital care by recognising that person-centred care and self-management support are fundamental to successful transplant outcomes and actively promoting the safe development of digital tools that strengthen these areas.

  • Promote open access to research by ensuring that findings related to quality of life, self-management, adaptation, and everyday living are shared promptly and transparently with the transplant community — through open-access publications, public events, and other accessible channels.

  • Build partnerships for healthy living by collaborating with patient organisations to encourage and support healthy lifestyles among transplant recipients.