ESOT-ETPO Alliance Network 

Our Network

The ETPO Alliance Network is a coalition of patient associations across Europe, brought together by ESOT, and united by their shared focus on diseases where transplantation is a treatment option. Led by a Steering Group of representatives from within the Network, Tthe alliance works collaboratively to enhance patient advocacy, education, and engagement in transplant-related activities, ensuring that the patient voice is central to advancing care and outcomes in transplantation. Its role is to:

  • Facilitate the exchange of best practices and resources among patient associations.

  • Identify common challenges faced by transplant patients and propose collective solutions.

  • Provide feedback to the Steering Group on local and regional patient needs.

  • Support the development of educational programmes and materials for transplant patients.

  • Act as ambassadors for ESOT’s Patient Inclusion Initiative within their respective communities.

If you or your organisation would like to get involved in our initiatives, please get in touch with us at askme@esot.org.

Alliance for Pulmonary Hypertension (Belgium)

Italian Pulmonary Hypertension Association (AIPI) (Italy)

The National Federation of Associations ALCER (Spain)

Associação Portuguesa de Insuficientes Renais (APIR) (Portugal)

Italian Association for Liver Transplant Patients (Italy)

Association of Patients with Respiratory Failure and lung Transplantation (APRFLT) (Bulgaria)

Bulgarian Society of Patients with Pulmunary Hypertention (BSPPH) (Bulgaria)

Danish Liver Association

(Denmark)

Dutch Kidney Patient Association (The Netherlands)

European Kidney Patients’ Federation (Austria)

European Liver Patients’ Association (ELPA) (Belgium)

European Transplant & Dialysis Sports Federation (ETDSF) (Ireland)

The Finnish Kidney and Liver Association (Finland)

France Heart and/or Lungs Transplants (FGCP) (France)

National Federation of Liver Patients and Transplant Patients (FNETH) (Spain)

FOKUS Patient

(Sweden)

Global Liver Institute – GLI

(United States and Italy)

Hellenic Community for Pulmonary Hypertension (Greece)

Hellenic Cystic Fibrosis Association (Greece)

Pulmonary Hypertension Association Europe (Austria)

Renaloo

(France)

Slovenian Transplant Association (Slovenia)

MOD – More Organ Donation (Sweden)

The Torch of Life Association (France)

Trans-Forme

(France)

Transplantoux

(Belgium)

Lung Transplant Patients Union – Padova (Italy)

Voice of VCA Patients

(Austria)

World Transplant Games Federation (United Kingdom)

Kidney Care UK

(United Kingdom)

Asociatia Transplantatilor din Romania (ATR) (Romania)